Reseña del libro "Rare But Not Alone: Raising Kids with Cyclic Vomiting Syndrome (en Inglés)"
"It's just a virus." "Oh, they will grow out of it." "Your child is doing this for attention." These are common phrases parents of kids with Cyclic Vomiting Syndrome (CVS) often hear. They can make us feel scared and alone, but we CVS parents know the truth. CVS is a true medical condition that is often misunderstood in the medical community. This condition often takes years to diagnose because of its unknown causes and overlap with others similar condition. Today there are a wealth of resources available and a wide variety of treatment options. We need not just sit and feel helpless watching our kids getting sick with little to offer them. Within this book you will find the experiences of parents just like yourself trying to make the best life possible for their child while living with CVS. Featuring "Grey's Anatomy" actress Chandra Wilson, Tiffany Sharpe from Trinity's Troops, and CVSA Founder Kathleen Adams! When we share our stories, we tell the world that though we are rare, we are not alone. "This book is such an excellent resource-whether you're a parent, caregiver, relative, friend, teacher, or anyone who wants to learn more about this disorder. Cyclical Vomiting Syndrome is a rare disorder that still isn't well understood. This book not only gives us medical information about CVS, it also takes us behind the scenes and shows us what CVS is like from a patient's perspective, a parent's perspective, and more." - Mandy Taylor Colleen Rice, MA Colleen suffered from Cyclic Vomiting Syndrome in the early 1980s before research and protocol for treatments were widely known. She now lives in New Hampshire with her husband, Dan, and their six children, one of whom has been diagnosed with CVS and has difficulty managing despite many ongoing interventions. Colleen has learned to balance (and sometimes juggle) raising all six of her children while giving unique attention to her often sick CVS child. With the help of her supportive husband and her mother, Peg, she takes a team approach to keep things going as smoothly as possible. Colleen holds a BA in Human Development from Rivier University in Nashua, NH and an MA in Theology and Christian Ministry from Franciscan University of Steubenville.
